Experience of Parenting a Child with Autism Spectrum Disorder (ASD)

Hello, my name is Rebecca Glover and I am a graduate student at Washington State University in the psychology department. I am conducting research on the experiences of parenting a child with autism spectrum disorder (ASD) for my master’s thesis. I am inviting caregivers (e.g., biological parent, stepparent) of one child with ASD ages 4 to 10 years to participate. You may take part in this study if you have other children without ASD. Only one caregiver per household may complete the study.

Participation in this research includes taking two online surveys. You will be asked to take one survey now and then a second survey in one year. Each survey will take approximately 1.5 - 2 hours, for a total of about 3 - 4 hours for the entire study.

You will receive a $10.00 gift card from your choice of Walmart, Target, or Amazon for completing each part of this study, resulting in a total of two $10.00 gift cards.  If you decide to quit the study you will not receive a gift card. Gift cards will be delivered either electronically via email or physically mailed to your home. If you receive payment for taking part in this study, you will be asked to provide your home address and email address.

If you have any questions or would like to participate in the research, I can be reached at Rebecca.Glover@wsu.edu. Please feel free to share this information with any families that may be interested in participating in this study.  This study has been approved for human subject participation by the Washington State University Institutional Review Board

Experience of Parenting a Child with Autism Spectrum Disorder (ASD) Flyer (PDF)

New Posting

WV BHHF: Families Conference

Posted: January 18, 2017

Saturday, March 11, 2017
8 A.M.
Lakeview Golf Resort & Spa
One Lakeview Drive Morgantown, WV 26508
304-594-1111

For more information, contact Roxanne Chaney at the WVDHHR Bureau for Behavioral Health and Health Facilities at Roxanne.K.Chaney@wv.gov. (304) 356-4805.

From the Social Security Administration:

National Work Incentives Seminar Event (WISE) Webinar
Make it Happen: The Ticket to Financial Freedom
Goal Setting, Work Incentives and Financial Independence
Wednesday, January 25, 2017
3:00 - 4:30 PM ET

If you are age 18 through 64, receive Social Security Disability benefits, and want to make more money through work, Ticket to Work can provide the support that you need!

Join us January 25, 2017 to learn from experts about financial independence. You will learn how Ticket to Work and other work incentives can help you reach your financial goals. Presenters will share tips, tools, and resources that can help you:

  • Gain basic financial knowledge such as budgeting and expense tracking
  • Understand tax benefits that may apply to you
  • Learn about asset building and how it can help you

Register online at www.choosework.net/wise or call 1-866-968-7842 (V) or 1-866-833-2967 (TTY).

You will receive a registration confirmation message with instructions on how to log in to the webinar. Please be sure to check your spam folder. Registration information will also be available online the day of the webinar.

New Posting

Name Change!

Posted: January 5, 2017

drwv 300px web

West Virginia Advocates, the federally mandated protection and advocacy system (P&A) in West Virginia for individuals with disabilities, is pleased to announce that beginning January 1, 2017, it will be doing business as Disability Rights of West Virginia (DRWV). 2017 will mark the 40th year of providing services to individuals with disabilities.

DRWV is a private, non-profit agency dedicated to protecting and advocating for the legal rights of West Virginians with disabilities. DRWV serves individuals with developmental, intellectual, and physical disabilities, as well as traumatic brain injury and individuals with mental health diagnoses.

DRWV’s Intake Department provides Information and Referral services to anyone who requests assistance. DRWV’s acceptance of direct advocacy and legal cases is determined by a variety of criteria including disability related eligibility criteria established by our funders, our current priorities and objectives, as well as available resources.

DRWV’s Legal Department includes a Legal Director and three Staff Attorneys. DRWV also employs fifteen advocates that provide direct advocacy services throughout West Virginia.

DRWV services are confidential and free of charge. For more information, call 800-950-5250.

SSA: Getting to Know the ABLE Act

Posted: December 19, 2016

Email from the Social Security Administration

Read our latest blog post, "Getting to Know the ABLE Act," at https://choosework.net/blog/2016-12-19-getting-to-know-the-able-act.

In this post, guest blogger Chris Rodriguez, Senior Public Policy Advisor at the National Disability Institute, gives an overview of the Stephen Beck Jr., Achieving a Better Life Experience (ABLE) Act. This law recognizes the extra and significant costs of living with a disability and provides a savings tool to address them.

Mr. Rodriguez describes ABLE accounts, their use and eligibility requirements and suggests a resource for additional information.

From the Social Security Administration:

National Work Incentives Seminar Event (WISE) Webinar
Ticket to Work: Debunking the Three Biggest Myths about Disability Benefits and Work
Wednesday, December 21, 20163:00 - 4:30 PM ET

If you receive Social Security disability benefits (SSI or SSDI) and want to make more money through work, Ticket to Work can provide the support that you need!

The December 21 national WISE webinar will address common myths about how working will affect your cash disability benefits and Medicare or Medicaid.

  • Find out how Social Security will postpone your medical continuing disability review (CDR) while you are participating in the Ticket to Work program.
  • Find out how you can restart your cash benefits without reapplying if your job does not work out.
  • Get details on how you can keep your Medicare or Medicaid after you begin replacing cash benefits with earnings from work.

Register online at www.choosework.net/wise or call 1-866-968-7842 (V) or 1-866-833-2967 (TTY).

You will receive a registration confirmation message with instructions on how to log in to the webinar. Please be sure to check your spam folder. Registration information will also be available online the day of the webinar.

The West Virginia Assistive Technology System (WVATS) will be working with Community Living Initiatives Corporation (CLIC), a local organization, to help the greater Morgantown area become dementia-friendly. CLIC received a grant from the West Virginia Bureau of Senior Services to help make our community more positive and supportive for individuals living with dementia and their family caregivers. WVATS will support this by developing a special fact sheet on memory/reminders/communication/ADLs.

In order to develop our statement of work for the grant, WVATS needs your help. The first step is to find out how our community is doing now; the link below is to a survey that will get us started. This is a baseline assessment. I know it’s a busy time of year but we need to get as many survey responses as possible by November 30. Please take a few minutes to complete the survey and share it with others you think would be interested.

Here is the official dementia-capable assessment specifically for our community. https://www.surveymonkey.com/r/68LCSY2

Older News items available in the News Archive.